Saturday, February 26, 2011


I've had to go private for these reasons I'm about to tell. We are not embarrassed by what has come to our family, but, more so want to protect our sweet 3 year old boy from harsh comments, or rude looks.

We have had some behavioral issues from him for about 2 years. What we thought he'd grow out of he hasn't yet. What we thought he'd change, he hasn't yet.

So, when we first moved back to San Diego, I made an appointment with his pediatrician to get him seen to get a referral for speech therapy, while we were in there, she said that she wanted him to get a full evaluation since he had been in speech therapy since he was 14 months old. No big deal. She assured me that it was a the best children's hospital in southern California. I was ok with that. It took us about 4 months waiting, but, we made it. We went there. Going in to that day, I kept thinking, it's just behavioral and I kept telling myself that over and over. You always want to expect the worse for these type of appointments and hope for the best. So, after about 5 hours in there, we got the results, results that I didn't want to hear or ever deal with. He has Autism. There, I said it. I hate that my child now has a "label" on him, I hate that he could have to go to a "special school". We don't know how severe it is yet since we are waiting for the full report back which could take about 10-14 days. For my peace of mind, I hope it comes a lot sooner. She did say that it was mild, but, what mild is to me and what mild is to a Dr. leaves me with questions.

So, that puts us at another huge issue for us right now. It could affect our orders, it could not. We could get our orders from Lemoore, CA pulled from us and have to renegotiate and start all over again. Depending on the category (the categories go from 1-5) that the Navy puts him in depends on if our orders get messed with. This is all happening when we are supposed to move in 3 weeks. So, in 1 day, our whole life has been turned upside down and we now face more challenges than we ever thought we'd have to face. We will do whatever we have to do to get our son the best care that he can get. If that means staying here for 4 years, then we'll do it.

Then we've been told to put him on a gluten-free diet. So, along with the behavior issues we are having, I'm hearing a 3 year old boy beg for a sugar free popsicle and say mama, please can I have a popsicle. I hate having to tell him no that he can't have that because it's got added dyes in it that he can't have. I know he does not understand what's going on, his whole little world was just changed 100%. He can have fruit, so I believe he's semi-happy.

So, please bear with me, if I come off snippy at you, I'm so sorry, please don't take it personal. It's been a really rough week around here, along with Nick being out to sea for 2 weeks, he wasn't able to go with me, so I don't have my support here to give me a huge big hug. I had to leave the appointment by myself with our 2 boys and drive home by myself and hold back tears and have my sweet little boy tell me when I can go at a red light and when I have to stop or tell me over and over what shape the stop sign is.

He really is the sweetest little guy ever, he loves his mama so much, well, maybe his cars and trains a little more, but, still. We know we have a long road ahead of us, we're prepared to fight for our little guy so much and do whatever it takes to make him better.

While we thought that the obsession with cars and trains was normal, it's not. While we thought the repetitive was annoying, he can't help it. I always wondered why he'd look at headlights when I turn our car alarm off or on, or why he'd lay down to look at the wheels on his car. My sister likes to call him "forest gump" since he runs everywhere, and I call him " a little bunny" since he likes to hop too, now, we know, he just can't help it. So much now, comes to light..

So, there you have it. It's a rough road. I hate being so far away from my family & friends when I need them the most. I hate that my mom lives 3000 miles away from me and I hate that I have to see all my nephews grow up in pictures of videos online. I swear, anyone military can tell you that it's hard sometimes being in this position. I wouldn't trade it for the world though, I have a amazing husband who takes great care of us.

There has to be good news soon, right?? Sigh!! :-(

Also, please, we are NOT posting ANYTHING to Facebook about this. The people who I invited to read my blog, I do trust NOT to judge us or label him. We just need huge support.

I hope that everyone's week is going much better than ours..

1 comment:

  1. Jo, I love you. You are an amazing mommy and both of your boys are so lucky to have you. Let me know if you need to talk, or need anything at all.